Press release -
Sobi supports children with haemophilia to talk about their disease – introduces movie maker app
Children living with haemophilia sometimes have a hard time talking about their condition or describing the implications the disease has on their life. Sobi has therefore, with the support of Consultant Nurse Dr Kate Khair and her team at the Great Ormond Street Hospital for Children, developed the Magic Movie Maker, which is now being introduced in the UK – a free iPad app created to enable children to enlighten others about what it means to live with haemophilia.
“For children with haemophilia, breaking the stigma and being able to live as normal a life as possible is as important as an effective treatment. The app is a great initiative, and I am very happy that it is now available” says Dr Kate Khair, Consultant Nurse at Great Ormond Street Hospital for Children, in London.
Haemophilia is a rare condition that almost exclusively affects boys. A reduced or missing coagulation factor in the blood impairs the body´s capacity for blood clotting, which essentially means that injuries take a longer time to heal, and people with haemophilia can experience bleeding episodes that cause pain, irreversible joint damage and life-threatening haemorrhages. The disease is mainly treated by injection of the missing factor.
Because the condition is so rare, most people who encounter children with haemophilia do not know what haemophilia is, how it is treated or how it affects the child’s life. Nor is it an easy topic for a child to bring into a conversation. Children with haemophilia can feel isolated and different having a condition that few friends understand and adults can be hesitant to invite a child with haemophilia into their home for fear of accidents.
“Sobi is committed to supporting the haemophilia community beyond developing pharmaceuticals. We wanted to create a playful, positive way for children to share their experiences of living with haemophilia. The Magic Movie Maker is a way for kids to have fun while sharing their experiences of what it is like to live with haemophilia”, says Philip Wood, Vice President and Commercial Head Haemophilia at Sobi.
The app is available for free download on the App Store, and can be used on iPads.
Magic Movie Maker screenshot
Press images are available at http://www.mynewsdesk.com/swedish_orphan_international_ab
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About the app
The Magic Movie Maker app is created for children ages 5-10 and features three interactive movies. Animated characters – Squeak the dragon, Captain Courageous the super hero and Archie the forgetful robot – designed especially for the app, ask the child about their interests, about everyday life with the disease, about the missing coagulation factor and how haemophilia is treated. For more information, please visit the website at www.MagicMovieMaker.info and watch this film on Youtube.
Related links
Topics
- Health, Health Care, Pharmaceuticals
Categories
- english
- united kingdom
- children
- ipad
- app
- sobi
- haemophilia
About Sobi
Sobi is an international specialty healthcare company dedicated to rare diseases. Our mission is to develop and deliver innovative therapies and services to improve the lives of patients. The product portfolio is primarily focused on Haemophilia, Inflammation and Genetic diseases. We also market a portfolio of specialty and rare disease products for partner companies across Europe, the Middle East, North Africa and Russia. Sobi is a pioneer in biotechnology with world-class capabilities in protein biochemistry and biologics manufacturing. In 2014, Sobi had total revenues of SEK 2.6 billion (USD 380 M) and about 600 employees. The share (STO: SOBI) is listed on NASDAQ OMX Stockholm. More information is available at www.sobi.com.
For more information please contact
Media relations
Oskar Bosson, Head of Communications
T: +46 70 410 71 80
oskar.bosson@sobi.com
