Ewan is a true inspiration, and has captured the hearts of The Sick Children's Trust's supporters and Celebrity Ambassador Jen Pringle.
The brave little boy, who sadly passed away earlier this year, had been crowned the winner of Frugi's Pyjama Party Sleeping Beauty competition after Mum Vicky sent in this adorable picture of her beloved son.
Vicky says: "I never expected his photo to win - I'm so proud of my little fella! As far as the prize goes I'd like to raffle the blanket and teddy to raise a bit more money for The Sick Children's Trust."
After being born seriously ill, at just a day old Ewan was rushed to Newcastle’s Royal Victoria Infirmary (RVI) for an operation to help him breathe. He was diagnosed with a condition called Hallermann–Streiff syndrome – an extremely rare genetic disorder found in just 150 people worldwide. His symptoms were manageable, and after five week, once he was stable, his parents could take him back home to Carlisle.
It wasn’t until a year later that Ewan was readmitted to hospital with further complications. He was in and out of his local hospital and the RVI for months, but from February his health rapidly deteriorated and his parents were told he was dying. Sadly, Ewan passed away at the RVI in April this year following a courageous battle.
During his treatment, Vicky and Michael stayed at Crawford House – free accommodation located at the hospital and run by The Sick Children’s Trust charity. Crawford House meant that the couple were just a few steps away from their son’s bedside, allowing them to be with him at all times, creating special memories with him.
Since he passed away, Ewan has inspired people in his local community to raised more than £6,000 for The Sick Children's Trust.