Nearly half of working age stroke survivors face financial hardship

New figures published today by the Stroke Association reveal that almost half (43%) of stroke survivors across the UK, aged under 65, are faced with financial hardship after their stroke. The charity’s findings reveal that more than 125,000 stroke survivors have experienced a loss of income, faced discrimination at work, and in some cases, have been forced to sell their home to pay for medical expenses.

The Stroke Association’s Lived Experience report is the UK’s largest ever survey of people affected by stroke⁽ⁱ⁾ with over 11,000 responses. The second chapter (of four), The wider impact of stroke, shows how the impact of the condition affects people’s working life, relationships and finances.

There are currently over 1.2 million stroke survivors in the UK, with a quarter of strokes happening to people of working age. The findings show the price tag that can come with a stroke, revealing that across the UK;

• Over half (51%) of stroke survivors aged under 65 gave up work or reduced their working hours following their stroke.
• Close to one in six (15%) of stroke survivors aged under 65 experienced discrimination, or missed out on a promotion, or said their employer was not supportive.

Vicki Hewlett, 24, from Essex, knows all too well the impact stroke can have on your working life and finances. After having her stroke in July 2015, when she was just 20 years old, Vicki found that her employers just didn’t appreciate her condition after returning to work as a horse riding instructor – a job she loved.

After coming home from work that July, Vicki found that she couldn’t raise her left arm, which she initially dismissed. However, after shouting her partner Chris, they suddenly discovered Vicki was unable to stand, smile or even speak.

MRI and CT scans at the hospital soon revealed Vicki had had a stroke but it would be six months before they discovered that the stroke had been caused by a hole in her heart. Vicki returned to work within a few months of her stroke but her situation would never be the same.

Vicki said: “After my stroke I felt like I had been hit by a bus. I have never felt so weak and delicate. When I came back to work, I never really felt like they understood the severity of my situation. I couldn’t do certain physical tasks anymore but I tried so hard to carry on as normal”

“They put it down to laziness that I couldn’t do certain things. One day I was told off for sitting down, which I had to do due to fatigue. I was told I didn’t look enthusiastic, I honestly felt like a liability to them and I was in tears every night”

Vicki’s employers continued to offer no support and she eventually lost her job. Vicki was never given much warning and even had to work her notice period as she couldn’t afford to be out of work

Vicki said: “One day I was called into a room and told it wasn’t working anymore. I was so worried about myself and my partner financially. In the end we were lucky that our families helped us out with groceries and a bit of money but the whole thing was scary. I remember being so angry at how my employer had treated me”

“Looking back now, it was a blessing in disguise. I’ve been in my new job for three years now, working in operations for a shipping company and I love it. I try to be a really positive person, so I do look back now and try to understand why I was let go but it’s never easy.”

Juliet Bouverie, Chief Executive of the Stroke Association, said: “Life changes instantly after a stroke, and the condition can have a huge cost, not only to people’s finances, but also to their health, independence and relationships. But not enough people realise the wider impacts that stroke can bring. Overnight, a partner becomes a carer. A breadwinner becomes jobless.

“These latest figures show that many stroke survivors are facing a life on the edge of poverty; many have had to give up work, and in some cases, face discrimination from their employers. This comes at a time when financial worries should be the last thing on their minds.”

The Lived Experience of Stroke report seeks to expose the realities of living with stroke. The charity wants everyone affected by stroke to have access to the support that they need, when they need it. The latest findings also show that:

• Nearly one in five (15%) of stroke survivors faced increased costs as a result of their stroke, which could include medication, aids and higher household bills due to being at home
• Sometimes stroke survivors even have to sell their homes to pay for medical expenses; across the whole UK stroke population this could be as many as 12,000⁽ⁱⁱ⁾ people.
• Only one in 10 (10%) of stroke survivors had used a benefits or financial advice service.

Juliet continues: “Recovery is tough, but with the right support and plenty of courage and determination, the brain can adapt. Time and again we’ve seen thousands of people adapt to a new life after stroke; and we’ve helped them to adjust to a new normal. However, it is extremely worrying that not enough stroke survivors are receiving the support they need to either remain in work or access vital benefits. I’d like to see more people contacting our Helpline to help them through this difficult process.”

The Stroke Association spoke to stroke survivors, who offered advice for anyone who has found their work or finances impacted by their stroke. They advised:

Before stroke happens, consider income protection insurance and critical illness cover. For those who have dependents, such as a partner or children, you might also consider life insurance.

• When returning to work, talk to your employer and agree reasonable adjustments to help you in the work place. This could be a phased return, part-time or adjusted hours, or a move to lighter duties.

• If you are an employer and an employee has had a stroke, learn about the condition to help you understand how it affects an individual. Ask your employee what they need as this will enable you to support them in the best way.

• A stroke can have a huge financial impact, stroke survivors need signposting to services or charities that offer financial support.

Don’t be afraid to seek help – whether you are a stroke survivor or you know someone who has had a stroke.

Angela Matthews, Head of Policy & Advice at the Business Disability Forum, said: “Soon after a stroke, a survivor has to navigate how different their body feels, the changed pace at which their body needs to work, and learn to adjust to doing things in new ways. All of this often happens in the background while needing to return to work so that personal finances are affected as little as possible. Stroke survivors might not be able to return to the same job they did before, but they can sometimes return to some type of work, albeit different to what they used to do.

“The worrying 51 per cent who have given up work following a stroke means employers are losing valuable, experienced talent. There is also the wider policy concern that the disability employment gap is being increased, when stroke survivors are not being supported back to work by both the healthcare and workplace settings working together.”

The Wider Impact of Stroke report is part two of a four part series focusing on the Lived Experience of Stroke. For more information about the Lived Experience of Stroke – Wider Impact report, visit www.stroke.org.uk/livedexperience.

The Stroke Helpline (0303 3033 100) offers information and support to people who have been affected by stroke.

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For more information on the research, please contact: Ken Scott, PR Officer at the Stroke Association at ken.scott@stroke.org.ukor 0115 7788429.

Notes to editors:

About the Stroke Association

• Stroke strikes every five minutes in the UK and it changes lives in an instant.
• The Stroke Association is a charity working across the UK to support people to rebuild their lives after stroke. We believe that everyone deserves to live the best life they can after stroke. From local support services and groups, to online information and support, anyone affected by stroke can visit stroke.org.uk or call our dedicated Stroke Helpline on 0303 3033 100 to find out about support available locally.
• Our specialist support, research and campaigning are only possible with the courage and determination of the stroke community and the generosity of our supporters. With more donations and support, we can help rebuild even more lives.
• You can follow us on Twitter, Facebook and Instagram.
• (i)The Lived Experience of Stroke – Hidden Effects, Stroke Association report surveyed 11,134 people affected by stroke; 1,880 people by online survey, and 9,254 by postal survey, conducted by 2CV (June – August 2018)
• (ii)Extrapolation based on 1% of the people who answered our survey said they had to sell their home to pay for medical expenses.

About Business Disability Forum

Business Disability Forum is a leading non-profit membership organisation which exists to transform the life chances of disabled people. With over 25 years’ experience, it brings together business leaders, disabled people, and Government to understand what needs to change to improve the life opportunities and experiences of disabled people in employment, economic growth, and society more widely. Business Disability Forum provides practical, evidence-based, strategic solutions for businesses to recruit, retain, and provide inclusive products and services to disabled people.

For more information, please visit http://businessdisabilityforum.org.uk/about-us/