Big moment for coeliac rights in the EU 🇪🇺🌾 Just two days ago, a petition by the Coeliacs of Catalunya and supported by AOECS, was accepted by the European Parliament’s Petitions Committee!
🚨 Did you know that up to 30% of coeliacs continue to struggle with symptoms even while following a gluten-free diet? Have you experienced the same issue? 🤔 Then you watch this recording of Professor Detlef Schuppan as he presents the latest pharmacological therapies for coeliac disease! 🌍🍞. Click here to see it 🎥
📢 New research from the ARCTIC study published in the AOECS Scientific Book 2024 reveals that a gluten-free diet alone may not normalise body composition in coeliac patients. The findings suggest that despite the benefits of a gluten-free diet, patients may still face significant health challenges. ⚠️ Read more about this in the AOECS Scientific Book 2024 🔗
📢 Advancing Gluten-Free Eating Out in Europe! 🍽️🌍 A joint conference in Belgrade arranged by some AOECS member associations brought together experts to tackle the challenges of providing safe, high-quality, and affordable gluten-free meals for people with coeliac disease. One outcome was the BEcME group’s commitment to work on a basic Eating Out Gluten-Free scheme. Read more about it. 🔗
🔬 New Research Highlights Challenges in Gluten-Free Diet Adherence 🍞🚫. Three recent studies in the AOECS Scientific eBook 2024 reveal key barriers to maintaining a gluten-free diet for coeliacs, from social exclusion and food insecurity to diagnostic differences across countries. 📖 Read more and explore the latest coeliac research in our Scientific eBook.
🚨 Over two-thirds of physicians lack transition plans for young coeliac patients as they enter adulthood, putting their health at risk! AOECS supports the UEG report's call for structured care programs and better education for adult gastroenterologists and health care professionals. We must bridge these gaps to ensure seamless care and continuity for coeliac patients throughout Europe.
AOECS congratulates Nobel Laureate David Baker on his pioneering work in computational protein design! His research, with applications for coeliac disease, could lead to new treatments targeting harmful gluten proteins. We celebrate this advancement alongside the coeliac community. 🌍 #coeliacdisease #nobelprize #AOECS #glutenfreealliance
The Association of European Coeliac Societies (AOECS) urges the Codex Committee on Food Labelling to include gluten in its new Precautionary Allergen Labelling (PAL) guidelines. AOECS warns that excluding gluten risks both safety and choice for coeliac patients. The call comes ahead of the Codex meeting in Québec City starting on 27 October 2024.
🚨 Deadline Extended! 🚨 We’re giving researchers extra time to submit abstracts for the AOECS Call for Scientific Papers on coeliac disease. The new deadline is September 23, 2024! Don’t miss this chance to showcase your research at our Annual Conference in Madrid this November. Let’s work together to advance the understanding of coeliac disease and improve lives. 🌍
The Association of European Coeliac Societies (AOECS) will bring the patient perspective to the International Coeliac Disease Symposium in Sheffield, UK, from September 5-7, 2024. AOECS Vice Chair Floris van Overveld is set to speak on September 7, emphasizing the need for research that addresses both the medical and social challenges faced by those living with coeliac disease.
Researchers from the Technical University of Munich have confirmed that gluten can migrate from certain biodegradable food contact materials (FCMs) into gluten-free foods, posing a risk to individuals with coeliac disease. The study found gluten levels as high as 203 mg/L in liquids exposed to wheat bran-based plates, significantly exceeding safe limits. Caution is advised for coeliacs.
📢 Have exciting research on coeliac disease? Share your findings with the global coeliac community! 🌍 Submit your abstract by September 9, 2024, for a chance to present at the AOECS Annual Conference in Madrid. 🇪🇸 Learn more about how to join this call on our website www.aoecs.org. Don't miss out! 🔬📅
📢 Join us for Spain's inaugural Parliamentary Day on Coeliac Disease! 🇪🇸 On May 16th, we'll raise awareness and discuss advancements in research and clinical practices. Tune in live from 10:00 to 13:30 CET. #CoeliacAwarenessDay #AOECS #glutenfreealliance 🌾✨
Join AOECS and AIC at the Senate of the Italian Republic on May 14th as they spotlight Coeliac Awareness Day. Led by Italian Senator Elena Murelli, this event amplifies the voices of those affected by coeliac disease, advocating for crucial awareness and support.
For consumers with celiac disease, it is important to be able to detect if food contains gluten. Precautionary allergen labelling (PAL) is a voluntary labelling practice used by food manufacturers to communicate the potential presence of allergens in food products that are not intentionally added as ingredients. AOECS advocates for further clarity and consistency for consumer-friendly labelling.
As artificial intelligence is being more widely used in healthcare, AOECS needs to stay alert to future developments. This became evident when Veronica Rubio, Secretary General of the Association of European Coeliac Societies (AOECS), and Tunde Koltai, Chair of the Board, attended the European Patient Forum Leadership Meeting centered on Artificial Intelligence on April 13th, 2024.
Are you interested in sharing your work on celiac disease at the largest medical conference for celiac disease this year? Submit your abstract before April 7th to the International Celiac Disease Symposium (ISCD). Open the story below to find the link to submit your research.
To balance the focus on medical research on coeliac disease AOECS puts the spotlight on the 8,700 hours per year when a person with coeliac disease is not a patient at the largest research conference on coeliac disease, the International Celiac Disease Symposium (ICDS) in Sheffield 5-7 September 2024.
Are you working with research on celiac disease or know somebody in that field? Hurry up - nominate candidates for the international Celiac Disease Foundation Research Prizes until February 23, 2024.
There is a belief that gluten-free products are healthier than gluten-containing thereby leading people to eat a gluten-free diet despite not having to. However, research presented in the new AOECS Scientific Research eBook shows that gluten-free food gives no added nutritional value and in some cases even is less healthy than equivalent gluten-containing products.