π Interesting news for the #Coeliac community A petition by Esther Roger from the Catalunyan Coeliac Society has been officially accepted by the European Parliamentβs Petitions Committee. It calls for a European Framework Directive on coeliac disease β including better diagnosis, training, support and access to gluten-free food. AOECS welcomes this initiative for coeliac rights across Europe. πͺ
π¨ Did you know that up to 30% of coeliacs continue to struggle with symptoms even while following a gluten-free diet? Have you experienced the same issue? π€ Then you watch this recording of Professor Detlef Schuppan as he presents the latest pharmacological therapies for coeliac disease! ππ. Click here to see it π₯
π’ New research from the ARCTIC study published in the AOECS Scientific Book 2024 reveals that a gluten-free diet alone may not normalise body composition in coeliac patients. The findings suggest that despite the benefits of a gluten-free diet, patients may still face significant health challenges. β οΈ Read more about this in the AOECS Scientific Book 2024 π
π’ Advancing Gluten-Free Eating Out in Europe! π½οΈπ A joint conference in Belgrade arranged by some AOECS member associations brought together experts to tackle the challenges of providing safe, high-quality, and affordable gluten-free meals for people with coeliac disease. One outcome was the BEcME groupβs commitment to work on a basic Eating Out Gluten-Free scheme. Read more about it. π
π¬ New Research Highlights Challenges in Gluten-Free Diet Adherence ππ«. Three recent studies in the AOECS Scientific eBook 2024 reveal key barriers to maintaining a gluten-free diet for coeliacs, from social exclusion and food insecurity to diagnostic differences across countries. π Read more and explore the latest coeliac research in our Scientific eBook.
π This Christmas, 700 gluten-free gift boxes funded by the AOECS Emergency Fund brought joy to coeliac children across Ukraine, even in front-line areas like Donetsk and Dnipropetrovsk. A heartfelt thank you to everyone who donated and made this magic possible! Together, we can continue supporting those in need. π #celiac2celiac #glutenfreealliance #AOECS #together4coeliacs
π¨ Over two-thirds of physicians lack transition plans for young coeliac patients as they enter adulthood, putting their health at risk! AOECS supports the UEG report's call for structured care programs and better education for adult gastroenterologists and health care professionals. We must bridge these gaps to ensure seamless care and continuity for coeliac patients throughout Europe.
π¨ Help Coeliacs Affected by Floods in Spain π¨ Due to severe floods caused by the weather phenomenon DANA, many in the Valencian Community, are struggling to access clean water and gluten-free foods. ACECOVA, in partnership with FACE, is raising funds to supply gluten-free essentials to those affected. Your support can make a difference! Read how you can help here.
π’ AOECS has released a new position paper on gluten-free beer, addressing the limitations of current gluten analysis methods and their implications for coeliac consumers. While challenges exist, gluten-free beers produced under current guidelines remain safe for coeliacs. Visit the AOECS webpage to download the full Position Paper π» #GlutenFreeAlliance #glutenfree #AOECS #together4coeliacs #beer
AOECS congratulates Nobel Laureate David Baker on his pioneering work in computational protein design! His research, with applications for coeliac disease, could lead to new treatments targeting harmful gluten proteins. We celebrate this advancement alongside the coeliac community. π #coeliacdisease #nobelprize #AOECS #glutenfreealliance
π¨ AOECS has published an updated position paper on gluten in medicines, cosmetics, and hygiene products. While gluten in these items poses minimal risk to coeliacs, the paper provides important guidance for patients, doctors, and manufacturers. Stay informed and make safe choices! π #CeliacDisease #GlutenFreeAlliance #AOECS #together4coeliacs
The Association of European Coeliac Societies (AOECS) urges the Codex Committee on Food Labelling to include gluten in its new Precautionary Allergen Labelling (PAL) guidelines. AOECS warns that excluding gluten risks both safety and choice for coeliac patients. The call comes ahead of the Codex meeting in QuΓ©bec City starting on 27 October 2024.
The Association of European Coeliac Societies (AOECS) will bring the patient perspective to the International Coeliac Disease Symposium in Sheffield, UK, from September 5-7, 2024. AOECS Vice Chair Floris van Overveld is set to speak on September 7, emphasizing the need for research that addresses both the medical and social challenges faced by those living with coeliac disease.
Researchers from the Technical University of Munich have confirmed that gluten can migrate from certain biodegradable food contact materials (FCMs) into gluten-free foods, posing a risk to individuals with coeliac disease. The study found gluten levels as high as 203 mg/L in liquids exposed to wheat bran-based plates, significantly exceeding safe limits. Caution is advised for coeliacs.
π’ Have exciting research on coeliac disease? Share your findings with the global coeliac community! π Submit your abstract by September 9, 2024, for a chance to present at the AOECS Annual Conference in Madrid. πͺπΈ Learn more about how to join this call on our website www.aoecs.org. Don't miss out! π¬π
π’ Join us for Spain's inaugural Parliamentary Day on Coeliac Disease! πͺπΈ On May 16th, we'll raise awareness and discuss advancements in research and clinical practices. Tune in live from 10:00 to 13:30 CET. #CoeliacAwarenessDay #AOECS #glutenfreealliance πΎβ¨
Join AOECS and AIC at the Senate of the Italian Republic on May 14th as they spotlight Coeliac Awareness Day. Led by Italian Senator Elena Murelli, this event amplifies the voices of those affected by coeliac disease, advocating for crucial awareness and support.
For consumers with celiac disease, it is important to be able to detect if food contains gluten. Precautionary allergen labelling (PAL) is a voluntary labelling practice used by food manufacturers to communicate the potential presence of allergens in food products that are not intentionally added as ingredients. AOECS advocates for further clarity and consistency for consumer-friendly labelling.
AOECS seeks clarification from the European Commission on a proposed change in Regulation (EC) No 1333/2008. This is a key piece of legislation within the European Union that governs the use of food additives (e.g. that can replace gluten). AOECS accepts the suggested change, but the main concern is if the current rules remain unchanged despite a new categorization.
Three independent studies from Coeliac Societies revealed gluten can migrate from food contact materials into gluten-free food. European Commission now assures ongoing preparatory efforts toward revising European Food Contact Material regulations to enhance consumer information, including labeling requirements and stricter rules on substance migration into food.